Thalassemia is an inherited blood disorder that causes an abnormal or inadequate amount of haemoglobin. Haemoglobin is the protein in red blood cells that carries oxygen. In most countries where thalassemia exists, patients with Beta-thalassemia major do not reach or surpass the age of 20 years. As they require regular blood infusions in order survive.
Living with Thalassemia
There are two main types of thalassemia, alpha thalassemia and beta thalassemia. Patients with thalassemia require regular blood transfusions and medication for normal living. There are NGOs working around the globe, collecting blood to help patients fighting the disease. Patients with thalassemia suffer bone deformities, slow growth, dark urine, pale skin, weakness and abdominal swelling.
International Thalassemia Day – addressing health inequalities
International Thalassemia Day is celebrated to commemorate those who are not among us and for those who are fighting against it. This year the theme of ITD is ‘addressing health inequalities across the global thalassemia community.’ The day is devoted to raise awareness amongst general public and health care authorities about the thalassemia global community. It is a plea to connect and work for the improvement of patients’ lives and well-being.
Celebrating International Thalassemia Day
International Thalassemia Day is observed on May 8 every year to draw attention to the thalassemia patients and address the current issues. Several activities are organised by NGOs in schools, colleges and other educational institutes to create awareness about thalassemia. NGOs may also appeal for blood donations to help those in need. About 7% of the global population carries an abnormal haemoglobin gene.
RMI experts recommend that individuals with Thalassemia should visit their doctor for regular checkups. GET TESTED TODAY!